WebThe RARE Health Equity Summit, hosted by Global Genes in partnership with the Rare Disease Diversity Coalition (RDDC) convenes all stakeholders in the rare disease community to identify collaborative efforts to address inequities in the care of patients with rare diseases, specifically focusing on reducing disparities, discrimination, and ... WebOct 12, 2024 · About Global Genes Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally.
Global Genes Announces Completion of RARE-X Merger and …
WebAs 2024 began, Rare Revolution interviewed Charlene Son Rigby, CEO of Global Genes, about the recent merger of Global Genes & RARE-X … WebAnnouncing another very important and compelling partnership! “Global Genes has established itself as a visionary organization for helping rare disease… henry co gis al
Global Genes Announces Completion of RARE-X Merger and …
WebFeb 7, 2024 · Global Genes unveils a three-pronged strategy focused on support for patients and developing communities, educational tools, and research enablement. ... or involved in drug discovery and development,” said Charlene Son Rigby, CEO of Global Genes. “The combination of Global Genes and RARE-X provides individuals, families, … WebFeb 1, 2024 · As 2024 began, RARE Revolution interviewed Charlene Son Rigby, incoming CEO of Global Genes, a global non-profit advocacy organisation serving the rare and genetic disease community.We learned how Global Gene’s recent merger with RARE-X will benefit the community, and how this newly strengthened organisation will be meeting the … WebOct 12, 2024 · Global Genes and RARE-X to Merge, Creating Next-Generation Patient Advocacy Engine ... closely aligned the missions of both organizations are and the synergies that would result from combining them,” said Charlene Son Rigby, CEO of RARE-X and rare disease advocate whose professional life has focused on building organizations at … henry c ohakah